Do you know someone with Frontotemporal Degeneration dementia (FTD)?

My friend and food mentor, Adrienne Zausner, was diagnosed with a form of Frontotemporal Degeneration dementia ten years ago.  She had symptoms like hesitant speech, unable to recall words and follow instructions for many years prior to her diagnosis.  Her husband took her to many doctors trying to get her diagnosed properly. Even after her diagnosis we still had many years before she was unable to speak or look after herself.  She is in a neurological care home now with very limited mobility and not able to speak, but she still loves her food. Please share your story in the comments so that others can benefit from your experiences.

About AFTD

This form of dementia is rare and many doctors are not even aware of its existence.  The Association for Frontotemporal Degeneration (The AFTD) is building awareness among the medical community and the general public so that patients and caregivers can find the support they need to manage this cruel affliction.  Their website has links to local support groups for caregivers and helpful articles, stories and books about FTD.  You can help raise awareness and fund a cure for FTD by supporting the AFTD’s Food For Thought fundraiser.  Together we can #EndFTD!

The AFTD are leading the efforts to improve the quality of life of people like Adrienne.  During the fundraiser I will be donating 100% of the proceeds from the sales of the book, Cooking with Adrienne, to the AFTD.  You can help support their cause by purchasing the book on Amazon.  Another way to build awareness is by sharing the Donate page on Facebook and Twitter.  Or send an email to friends you think might be interested in contributing and include a link to the Donate page.  Whatever you do, thank you from the bottom of my heart for your help.